tag:blogger.com,1999:blog-2263920188140464269.post8225264886694119585..comments2024-03-11T17:51:57.371-07:00Comments on Practical Bioethics: Do Your Little Bit of Good: National Pain Strategy Comment Period Ends May 20Practical Bioethicshttp://www.blogger.com/profile/17111101925898726995noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2263920188140464269.post-59256788291548152632015-05-01T17:46:04.056-07:002015-05-01T17:46:04.056-07:00As a person suffering from chronic pain and pain o...As a person suffering from chronic pain and pain originating from chronic illness, I find the NPS intrusive, costly, unmanageable, and misinformed. <br /><br />Research remains incomplete and flawed. Even researchers don't support over-generalizations! Some results are skewed by agendas - from the DEA; pharma-supported "advocates;" researchers hungry for HHS dollars; professionals juggling for status. <br /><br />The voices of people suffering have also been drowned out by concerns for illegal users.<br /><br />However well-meaning, the committee behind this report was comprised of people well enough to function which absolutely skews its content. Where is the input from those whose chronic pain is life-altering to the point they're rendered housebound and in need of help for even simple tasks, whose incomes are decimated, whose mobility is impaired... <br /><br />Whatever attributes of the imaginary chronic pain population targeted by this study, a substantial portion of chronic pain patient experiences have been left out. Finding doctors to diagnose accurately has been an ordeal; keeping pain management protocols worked out arduously over years are in jeopardy for no reason other than prescriber fears.<br /><br />The cost-benefit approach is a huge risk for patients who benefit greatly from injections - already targeted as "less effective". Tell that to my family - those injections might not be a panacea but they meant the difference between having me participate in Xmas or not - how will the NPS measure that kind of value?!<br /><br />After nearly two decades, I look back and wish my younger self knew that level of pain would be welcome compared to what life is like now. If doctors had been willing/able to attack the pain with opiate therapy earlier would my brain/CNS have avoided misinterpreting touch as a painful stimulus?<br /><br />And all the monies wasted on years of physical therapy and countless multi-modal practitioners... Maybe a decent stress-relieving vacation would have been better.<br /><br />My family is one of the millions on the precipice due to medical debt. The prospect of more debt, as would be required by the bio-psycho-social tactics in the NPS will surely put us over the edge - unless I jump off first. Remember how suicide rates among those in intractable pain were one reason that pain-relieving opiate medications became accessible? <br /><br />I strongly urge those well-meaning individuals behind the NPS to reconsider its impact on chronic pain individuals. And to evaluate its impact on those with severe intractable pain suffering for years (not months!)<br /><br />Thank you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2263920188140464269.post-24376991236189197642015-04-09T12:15:42.932-07:002015-04-09T12:15:42.932-07:00People in pain are not populations and shouldnt be...People in pain are not populations and shouldnt be treated like they are a population. So the uniformitarian approach to pain and problems in pain care- will surely fail- as it fails to recognize the great heterogeneity in the world of pain. So a biopsychosocial interdisciplinary model- a one size fits all model(and an underresearched and unproven model) will also fail individuals in pain.<br />Its remarkable to me how so called pain experts and their professionalized lay experts make so much out of what they know and so little out of what they dont know. But, their underpowered, underresearched and misguided occupational strategy they call the NPS will not help individuals in pain much as it doesnt call for lowering the prevalence of any pain conditionor lowering pain scores or returning people to work or lowering the burden of treatment. Pain Carew ill remain An American Tragedy and the NPS has failed our NAtpain care improvementhttps://www.blogger.com/profile/10331312265419671120noreply@blogger.com