Wednesday, December 9, 2020

The Truth of COVID-19: An Ethicist Reflects on His Experience

I have been honored and privileged to serve the Kansas City region through my work at the Center for Practical Bioethics during this challenging year of COVID-19. My role has grown during this pandemic, as I share in the work of providing ethics services in several hospital systems in the region. This has involved front-end work, including structure and policy development, as well as groundwork such as conducting clinical ethics consults and supporting medical staff with ethics education and guidance. I am grateful to help our hospitals and health systems prepare for, manage and move forward in facing the ethical challenges of the pandemic. 

But this role comes with an additional emotional burden. While I share in these organizations’ successes as they build and grow ethics services, I also share in their hardships and challenges as we work to address highly unusual and sometimes unprecedented ethical issues. This access and knowledge have led me to a foundational truth about the COVID-19 pandemic: People are our greatest resource, and they are not an unlimited one. 

Every one of the healthcare workers I’ve encountered is exceptional, and exceptional people step up and grow during the most challenging times. That is exactly what I have seen this year. As a society, we place high expectations on healthcare workers. We take advantage of their skills and rely on their dedication. When patients arrive at the ER, we expect fast response and quality service. When patients receive a cancer diagnosis, we expect the marvels of medicine and intimacies of compassion. When a family member is in the ICU, we expect the best care possible. These expectations exist because that is what healthcare workers deliver, day after day after day. And when a global pandemic uproots our lives and threatens the health and safety of everyone, new expectations are placed upon healthcare workers. And again, they rise to the challenge. 


A Finite Resource

But this resource is not infinite. Why? 

Hospitalizations Rising   Not every hospital is at maximum capacity or needs to implement crisis standards of care. But after months of challenges and difficulties for our healthcare workers, we are entering a new time with more expectations. In the beginning of the pandemic, we faced the crisis related to shortages of PPE (personal protective equipment). Now we must face the possibility of a shortage of those who wear the PPE. As hospitals reach new levels of capacity and with new COVID-19 units being established, staffing is stretched to extremes. There are potentially not enough qualified clinical staff to care for the levels of patients in need of care. This is only expected to worsen as infections spread.


Moral Distress – Distress from being required to do things that conflict with one’s conscience, professional duty and moral principles is particularly stressful now for front-line healthcare workers. These are individuals who are making the decision to go to work, day-in and day-out during this crisis, risking their health and safety and the health and safety of their families because they believe in the importance of their work. Selflessness does not begin to describe that level of commitment to their fellow companions. They see first-hand the burdens, the true pain and suffering, that the pandemic brings. 


The Empty Glass


I have worked intimately with many of these front-line healthcare workers and have heard their stories. Stories that bring the truth of COVID-19 to anyone willing to listen. 


I have heard from the physician who stayed on for an additional shift to honor his promise to a dying patient whose family was unable to visit that he would not die alone. 

I have heard from a nurse who was unable to see immediate family because of fear of bringing the virus back home.

I have heard from a physician who watched four patients suffer and die from COVID-19, only to return to the clinic and be told by another patient that it was all political and that the virus would be gone after election day. 


Healthcare workers pour themselves into their work and their patients, like water from a glass. Without help, support and consideration, the glass eventually empties, and they have nothing more to give. This is what comes with the job and is a load shared by all. It is a why healthcare workers earn the respect we give them. 


United We Stand


Supporting our healthcare workers must be a united fight, or it is destined to fail. When faced with nearly impossible odds, Sir Winston Churchill said he had “nothing to offer but blood, toil, tears, and sweat.” His nation stepped forward to fight the threat to life and safety; from the solider to the factory worker to the caregivers at home and leaders at the top, they all gave everything together and overcame the grave threat. 


I have seen our great healthcare workers give all this and more to fight this fight against COVID-19, but I see some in leadership outside of the hospital step away, deny or ignore the threat and the fight. This is destructive to so much that we hold dear. This is a fight that will possibly worsen before it improves. We see the impact it has right now and fear what the future might hold.


I have had the privilege to work and share with those fighting and giving everything. 


We must not let them fight alone.


Ryan Pferdehirt, D. Bioethics, HEC-C

Clinical Ethicist

Director of Membership and Ethics Education

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Wednesday, September 16, 2020

MEDICAL BANKRUPTCY, PERSONAL LUCK AND A NATIONAL SIN

By Tarris Rosell, PhD, DMin
Rosemary Flanigan Chair at the Center for Practical Bioethics
Professor of Pastoral Theology—Ethics & Ministry Praxis, Central Baptist Theological Seminary
Clinical Professor, School of Medicine, University of Kansas Medical Center
Director, Hospital Ethics Consultation Service, The University of Kansas Health System

I was raised on a farm up in Minnesota by Fundamentalist Depression-era parents. Among the many rules taught by words and deeds was that you don’t buy what you can’t afford. And never accrue debt. Save enough to buy a car when it’s needed, and then only buy the car that costs the amount you have saved.

That policy worked well for my nuclear family because of white privilege and a whole lot of luck. Others in our family had not always been so lucky, however. My grandparents, on both sides, had bad luck during the 1930s. They had accrued debt that they couldn’t pay when times got hard. Family farms were lost. Everything gone to debt collectors, some of whom were luckier neighbors. So “Never buy what you can’t afford” became our mantra. Not cars or even farms. Never acrrue debt. 

What works for some and in regard to cars or farms doesn’t work as well when what one cannot afford is healthcare. I can live with a cheap set of wheels, or maybe none at all. But my Depression-era father could not live without expensive cancer and cardiology care when he needed it. And there were no cheaper options. In healthcare emergencies, there is no Ford instead of a Lexus. It’s all Lexus. Or Lamborghini. Thank God my Dad had Medicare. Thank God I have employer provided insurance. 

But not everyone is so lucky. That is the truth we all know and of which we’re reminded by a recent (September 1, 2020) West Health and Gallup report on bankruptcy due to medical costs. What researchers learned is summarized in the title: “50% in U.S. Fear Bankruptcy Due to Major Heath Event.” https://news.gallup.com/poll/317948/fear-bankruptcy-due-major-health-event.aspx  

While half of all adults reported that they are either “concerned” or “extremely concerned” that medical bills will bankrupt them, 64% of non-white adults are in that category, an increase from 52% reported in 2019.



 


There are no real surprises here. Why wouldn’t at least half of U.S. adults be concerned or extremely concerned about the specter of financial disaster if they get sick? On an inventory list of healthcare products and procedures for sale, there is virtually nothing the average person could afford to buy out of pocket. Yet when healthcare is really needed, we either buy or die. Or perhaps we don’t die but suffer instead, including the financial stress of accrued debt. For lack of good alternatives, many have bought what they couldn’t afford.

Of what am I reminded when reading this Gallup report? That Depression-era wisdom applicable to car-buying doesn’t work when it comes to healthcare—or only if one is very lucky. Surely in this nation we can and should depend on something other than luck. Shouldn’t we?

Actually, my people never used the word “luck”. We talked in terms of being “blessed”. We were blessed even if others were not when medical and then financial disasters struck. 

Really? I have come through my own faith journey to see things differently. Being blessed or not implies the intervention of a higher being, the actions of God. While remaining devout in my faith tradition, what I no longer believe is that God is the agent of inequity. When it comes to healthcare disparities and consequent financial disasters, I have stopped blaming God, even by implication. This mess is our fault. As a people, we have failed each other. It is a failing that many who believe as I do recognize as sin, both personally and socially. And individuals like my father and I who have thus far escaped the consequences of our national sin are indeed lucky while others are not. 

But even for those most fortunate and privileged, luck has a way of running out. If only as a matter of self-interest when it comes to healthcare costs, or possibly out of compassion as well, we all ought to be “concerned” or “extremely concerned.” Shouldn’t we?

[Portions of this essay were previously published Sept 14, 2020 in an article at GoodFaithMedia.org by Zach Dawes. https://goodfaithmedia.org/reaction-and-response-medical-bankruptcy-concerns-half-of-us/.]


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Monday, June 29, 2020

SUPPORT MISSOURI MEDICAID EXPANSION

Register by July 8 to Cast Your Vote on August 4 Ballot

On Tuesday, August 4th, voters in Missouri will have the opportunity to vote on a ballot measure called Amendment 2, which amends the Missouri Constitution to “adopt Medicaid Expansion for persons 19 to 64 years old with an income level at or below 133% of the federal poverty level.” Your vote is critical.

The referendum prohibits making eligibility requirements more strict for the expanded group than what the more limited group faces. It requires state agencies to maximize funding received from the federal government for expanding Medicaid in Missouri, making millions of dollars available for health coverage to Missouri’s poor.

Medicaid is a critical part of our healthcare system, providing coverage for people with limited incomes. But in states like Missouri that have not yet expanded Medicaid, many people fall into what is called the “coverage gap” - a no-pay zone where poor and mostly working Missourians live without the benefit of health insurance and cannot receive subsidy or help with their premiums as their peers in 36 states across the nation do.

Medicaid expansion would allow those poor Missourians to get basic coverage they need to take care of themselves and face health crises of any kind head on –  even things like COVID-19!  Employer-based health coverage is being cut drastically due to COVID and people need help, NOW!  Nearly one-quarter million Missourians would receive help through expansion - and that’s a figure before COVID-19 happened resulting in thousands more laid off workers who now have no income for health coverage.

The expansion of Medicaid in Missouri is funded by tax dollars that Missourians pay and receive no benefit. In effect, the expansion “brings our tax dollars home,” putting that money back into local communities, creating jobs and supporting hospitals from inner city urban areas to small rural communities  - the very settings that are struggling to keep their doors open.

We need every voter in Missouri to register to vote by July 8 in order to cast a ballot on August 4 for Medicaid expansion in Missouri. Do you part and take action, spread the word.

For more information about keeping our communities healthy through the Missouri Medicaid expansion and how you can support this initiative, go to yeson2.org 

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Wednesday, June 24, 2020

National Healthcare Decisions Day 2.0

In the future, those of us who survive 2020 will use words like “scary,” and “uncontrollable” in describing this pandemic year. But right now, you can control one very important aspect of your life – the end of your life. I’m not being flippant. It’s true.
Due to the pandemic, National Healthcare Decisions Day (NHDD), which is always the day after Tax Day, is doing a reboot or a second round – a 2.0. Since Tax Day was moved to July 15, NHDD is moving to July 16. NHDD has always used the “death and taxes” slogan to remind people to complete or review their advance care directive.
On the Center for Practical Bioethics website, we’ve made it easy to host an NHDD health fair-type event at your hospital or organization with your choice of two marketing kits.
If you’re an individual who hasn’t completed your advance care directive, we offer a free download from our website of our workbook in English or Spanish. 
Whether you are an organization or an individual, you can call us anytime if you have questions or need guidance on advance care directives.
So 2020 is scary and much of what’s happening may be uncontrollable, but hosting an NHDD event or filling out your directive can be an easier accomplishment in 2020 with the Center’s resources.

Written by Monica Delles

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